Barbara Thompson - My affair with Parkinson's

Parkinson's – Ways of Coping

Barbara Thompson writes:

When I was diagnosed with Parkinson’s Disease, 9 years ago, it came like a bolt from the blue. First of all I had no idea what PD was, and the specialist, whom should be nameless, did not enlighten me. When I arrived home from the hospital, Jon was rehearsing with Colosseum, and I deliberated whether or not, to interrupt him. When they came out for a break, I took him aside and told him the unwelcome news. “What do you want me to do”, he asked, “shall I stop the rehearsal and send everybody home?”

I told him just to carry on, and that is basically what we have done. I decided earlier on that the only way to cope was not to make it the main point of my life, but treat it as an unwelcome visitor, whom if you made comfortable, made less demands on you. Most of the time when I am concentrating on what I am doing, I don’t give PD a thought. Negative thoughts like “Why me?” should be rejected instantly, because first of all they don’t help your situation, and secondly it suggests that you would rather someone else had PD rather than yourself, which again is negative thinking.

 

 

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It is quite normal to feel frightened, but that usually is ‘fear of the unknown’. Okay, PD is a progressive condition, but nothing drastic happens in the short term, and it is not life threatening. When you feel the dark clouds closing around your head, just remember that historically PD has been around for centuries, and so many famous people have suffered from it including Julius Caesar. These people still achieved, without help from drugs in those days.

I always feel better when I am involved with interesting projects. The worst thing you can do is just sit at home, doing nothing and worrying. Recently I saw a fascinating programme on Alternative Therapies. As you all know, PD sufferers lack dopamine, which is the chemical produced in the brain which controls muscle movement. This programme showed the power of the mind over matter. When patients were given real treatment and fake treatment or no treatment, the non treatment had the worst results, but the placebo treatment did as well as the real treatment. One of the patients was a PD sufferer who was given fake treatment, but despite this, improved incredibly in his mobility, and a scan showed dopamine being produced in his brain at a high level, with no other means than that of thought. It seems that good strong emotions such as hope and joy, help the brain to manufacture dopamine.

Recently, while I was on tour in Germany, I went to see a famous healer, and had some beneficial treatment from him. When he sees somebody for the first time, he gives them the once over, and he found a cyst in one of my ovaries, which he said he fixed. Sure enough, that evening I felt a trickle of clear water running down my right leg, with no trace of where it was coming from, and when I saw him the next day, he said that it had gone.

Recently when I saw my specialist, he told me that research is very much under way, and it is only a matter of a few years before stem cells will be used to cure PD. So PD sufferers, let’s live in hope!

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